The ALS Hope Foundation is proud to sponsor many of the ongoing programs at the MDA/ALS Center of Hope. The breadth of the programs and services offered at the clinic are limited only by the funding the ALS Hope Foundation receives. If you are interested in working with us to develop a new program, please contact the ALS Hope Foundation office.
Basic And Clinical Research
ALS Educational Programs
The ALS Hope Foundation provides education to PALS, their family members and caregivers, health care providers, and other facilities or agencies that provide care to PALS. The topics are wide-ranging and include education on ALS in general and quality of life choices such as ventilators and tracheostomies, feeding tubes, and other healthcare decisions. Our initiative Hope Educates is a program that allows students from the community to learn more about ALS and the families it affects by visiting the Center of Hope as well as our research lab and administrative offices.
The ALS Hope Foundation is also a longtime supporter of the annual Allied Professionals Forum, an program at the International Symposium on ALS/MND dedicated to educating healthcare providers from around the world in the unique needs of people with ALS.
Assistive Technology Program
Sponsored in part by the Gitlin Family Foundation, this program preserves PALS' communication and independence with user-friendly electronics available for loan (including Apple iPads). Learn more about the assistive technology resources available to PALS at the Center of Hope here. Click here for a presentation on computer access for people with ALS by Sara Feldman, DPT.
Equipment Loan Closet
The Center of Hope, with the help of the Muscular Dystrophy Association, offers PALS equipment and supplies on loan for the period of time needed, after which the equipment is returned so that it can be re-loaned to other patients. Typically loaned items include communication devices (such as eyegaze computers), iPads, power wheelchairs, shower chairs, patient lifts, and any other equipment and supplies donated by PALS and families. The ALS Hope Foundation partners with the MDA to support the costs associated with the delivery, repair, and maintenance of all equipment.
Home Visit Program
Various members of our ALS multidisciplinary team provide home visits to PALS and/or family members. The purpose of these visits is to enhance the continuity of care between clinic appointments and to cover topics such as: home safety, computer access, augmentative communication needs, care plan management, end-of-life choices, emotional/educational counseling, ventilator withdrawal, the dying process, and bereavement.
Caregiver Support Program
We participate in support groups and meetings with the Muscular Dystrophy Association. The dates and locations are updated on our events calendar and Facebook page.
Parking Voucher Program
PALS who visit the MDA/ALS Center of Hope can receive validated parking vouchers when they park in the Boyer Pavilion Parking Lot, whether they valet or self-park. An ALS Hope representative will provide parking vouchers during clinic visits.
We depend on volunteers, like you, to help us fulfill our mission. If you are interested in volunteering with the ALS Hope Foundation, please contact us at email@example.com.