Join us for the 6th Annual Gala of Hope!

Saturday, February 24, 2024 5:00PM-10:00PM ET

Vie by Cescaphe, 600 N Broad Street, Philadelphia, PA 19130

Join us for an evening filled with good food, drinks, live entertainment, a silent auction and more!

Hear from speakers John Sweeney, a person living with ALS, and Dr. Terry Heiman-Patterson, ALSHF President.

We will be honoring our 25 years of serving the ALS community.

We look forward to sharing this beautiful evening of HOPE with you!

Join us for a truly exceptional event that combines the joy of golf, the delight of brunch, and the spirit of giving! On October 8th, from 10:00 AM to 1:00 PM, we're hosting an event at Top Golf in King of Prussia that promises a memorable day of fun and support for a great cause.

Event Details:
Date: Sunday, October 8, 2023
Time: 10:00 AM - 1:00 PM
Location: Top Golf King of Prussia

What to Expect:

1. Golfing for a Purpose: Whether you're an avid golfer or a newcomer to the sport, this event is designed for everyone. Top Golf's state-of-the-art facilities provide a fantastic golfing experience, ensuring that all skill levels can participate. Tee off for a full three hours, perfecting your swing all while supporting ALS research and the Dr. Robert J. Sinnnot Research Lab.

2. Brunch Delights: As you work up an appetite on the green, enjoy an array of delicious breakfast and brunch dishes as well as our mimosa bar!

3. Making a Difference: All proceeds from this event will go directly towards the Dr. Robert J. Sinnott Research Lab for ALS research. Your participation will contribute to making a significant impact in the lives of those affected by ALS.

The ALS Hope Foundation is pleased to present the 16th Annual Hope Walks for ALS on September 10, 2023 at Temple University’s Ambler Campus!

This event provides much needed funds to support the clinical, research and educational efforts of the ALS Hope Foundation and is the only walk that supports the work of the ALS Hope Foundation and the team at the MDA/ALS Center of Hope.

Our team wants to see your team!

Click here to sign up your team today!

Join the Lancaster Barnstormers for an exciting evening of baseball and advocacy as we come together with the ALS Hope Foundation to raise awareness and support for ALS (Amyotrophic Lateral Sclerosis) research and patients. ALS Awareness Night at Clipper Magazine Stadium aims to spread awareness about this devastating disease while celebrating the strength and courage of those affected by ALS.

Date: August 17th

Time: Gates open at 5:30 PM Games starts at 6:30 PM

Location:Clipper Magazine Stadium

A portion of all ticket sales will benefit the ALS Hope Foundation!

Join us for a musical evening at Teatro Esperanza celebrating Latin American music and raising awareness about ALS and Neurodegenerative Diseases in the Latino community.

This concert will feature a wide variety of Latin music celebrating the rich musical heritage in the community while raising awareness about ALS and Neurodegenerative diseases. We are expecting more than 300 members of the Latino community to attend the concert and enjoy the evening while also learning about ALS and Neurodegenerative diseases and the ALS and Neurodegenerative Disease Center of Hope at Temple University Lewis Katz School of Medicine which is a local resource where we will provide excellence in care in a patient centric and culturally sensitive manner.

The concert will introduce our health equity program being developed in collaboration with the ALS Center of Hope at Temple University Lewis Katz School of Medicine. Data from Emory University and Virginia Commonwealth University has shown that there are delays in diagnosis of ALS within the black community which translates to delayed treatment with available medicines that slow the disease down without stopping the progression. Similar work in the Latino community is underway as is research on application of other interventions that prolong survival and improve quality of life in underrepresented populations. This program will focus on healthcare literacy about ALS and neurodegenerative disorders for both healthcare providers and community members in Latino and Black communities surrounding Temple University. Additionally, we are working to provide easy patient-centric access to multidisciplinary care in culturally sensitive settings that will provide excellence in the care of ALS and neurodegenerative diseases.

All are welcome! Admission to the event is free. Donations are appreciated.

The concert features: Alexa Anderson, soprano; Elizabeth Patterson, soprano; Celeste Camarena Mojica, mezzo soprano; Sergio Gonzalez, tenor; Gabrielle Rebolla, piano; Igor Vieira, baritone; and The Ensemble of Hope.

Únase a nosotros para una velada musical que celebra la música latinoamericana y crea conciencia sobre la ELA y las enfermedades neurodegenerativas en la comunidad latina.

Sábado, 17 de Junio, 6PM ET

La Fundación ALS Hope se complace en presentar el Concierto de Esperanza el 17 de junio a las 6:00 p. m. en el Teatro Esperanza. Este concierto contará con una amplia variedad de música latina que celebra la rica herencia musical de la comunidad y crea conciencia sobre la ELA y las enfermedades neurodegenerativas. Esperamos que más de 300 miembros de la comunidad latina asistan al concierto y disfruten de la noche mientras aprenden sobre la ELA y las enfermedades neurodegenerativas y el Centro de Esperanza de ELA y Enfermedades Neurodegenerativas de la Escuela de Medicina Lewis Katz de la Universidad de Temple, que es un recurso local donde Brindaremos excelencia en la atención de una manera centrada en el paciente y culturalmente sensible.

El concierto presentará nuestro programa de equidad en la salud que se está desarrollando en colaboración con el Centro ALS de Esperanza en la Facultad de Medicina Lewis Katz de la Universidad de Temple. Los datos de la Universidad de Emory y la Universidad de la Commonwealth de Virginia han demostrado que hay retrasos en el diagnóstico de la ELA en la comunidad negra, lo que se traduce en un tratamiento retrasado con los medicamentos disponibles que ralentizan la enfermedad sin detener su progresión. Se está realizando un trabajo similar en la comunidad latina, al igual que la investigación sobre la aplicación de otras intervenciones que prolongan la supervivencia y mejoran la calidad de vida en poblaciones subrepresentadas. Este programa se centrará en la alfabetización de la atención médica sobre la ELA y los trastornos neurodegenerativos tanto para los proveedores de atención médica como para los miembros de la comunidad en las comunidades latinas y negras que rodean la Universidad de Temple. Además, estamos trabajando para proporcionar un fácil acceso centrado en el paciente a la atención multidisciplinaria en entornos culturalmente sensibles que brindarán excelencia en la atención de la ELA y las enfermedades neurodegenerativas.

Todos bienvenidos! Entrada gratuita, se agradecen las donaciones.

El concierto cuenta con: Alexa Anderson, soprano; Elizabeth Patterson, soprano; Celeste Camarena Mojica, mezzo soprano; Sergio Gonzalez, tenor; Gabrielle Rebolla, piano; Igor Vieira, baritone; and The Ensemble of Hope.

Join us Saturday, June 17, 2023 for the 2nd Annual Colleen’s Classic for ALS golf tournament at the beautiful Gambler’s Ridge Golf Club in Cream Ridge, NJ!

Registration: 12:00PM

Shotgun Start: 1:00PM

Dinner and Awards: 6:30PM

$10,000 Hole-in-One contest and more!

Go to the website to register and learn more!

Join us for our 5th Annual Run for Hope 5K!

Sunday, June 4, 2023
8AM ET Run Start
Norristown Farm Park

Timed 5K and an optional 1 Mile Walk!

You are invited to the Research Update and Awards Luncheon.
Join us as we hear from our guest lecturer, Dr. Matthew Harms, learn about the work of the ALS Hope Foundation, and thank our supporters!

Sunday, May 21, 2023 11:00am - 2:30pm ET

The Inn at Villanova 601 County Line Road Wayne, PA 19087

Guest Speaker: Dr. Matthew Harms

Dr. Matthew Harms is a neuromuscular neurologist and neurogenetics expert focused on ALS and related motor neuron diseases.  Dr. Harms’ lab applies cutting-edge genetic sequencing technologies to discover new genes, define the frequency and range of genetic mutations in ALS, and characterize links between specific mutations and specific types or manifestations of ALS.  He is the Director of Precision Medicine Initiatives at Columbia University, Director of the Neurogenetics Program in the Department of Neurology, and Associate Director of the Eleanor and Lou Gehrig ALS Center."

Join us for the 5th Annual Gala of Hope!

Saturday, April 15, 2023, 6:30-11:30PM ET

VIE by Cescaphe 600 N Broad St, Philadelphia, PA 19130

Join us for an evening filled with good food, drinks, live entertainment, a silent auction and more!

Guest speakers to include our president Dr. Terry Heiman-Patterson, Temple Health representatives and Joel Goldhirsch (virtually) a person living with ALS who will update us on the the work we have been doing with his named funds in collaboration with Your ALS Guide.

Our Keynote Speaker, Dr. Stacy Lewin Farber, will share her personal experience with ALS.

We look forward to sharing this beautiful evening of HOPE with you.

The ALS Hope Foundation and the MDA/ALS Center of Hope at Temple Health invite you to attend our Remembrance and Reflection Memorial Service

Sunday, March 19, 2023 11:00AM ET.

This event will be held both virtually and in-person.

The Inn at Villanova University 601 County Line Road, Wayne, PA 19087

Light refreshments will be served.

Please RSVP to Paris DiLorenzo by March 13, 2023 paris@alshopefoundation.org or 215-568-2426.

If you prefer to attend virtually, a zoom link will be sent out when you RSVP.

Photo by John Bussell on Unsplash

Saturday, February 4, 2023

6:00pm - 11:00pm

The 50in1 Bar Crawl for ALS returns across the country! Join Team, Hope on Tap, at Xfinity Live in Philadelphia! Help support ALS Hope Foundation, Hope Loves Company, and the Joan Dancy Foundation and be a part of what will be the largest party in the country that day! This Philadelphia crawl will feature karaoke, silent disco, live bands, a mechanical bull, a silent auction, and many food and drink specials.

Register Now!

Rescheduled!

The first annual Colleen’s Classic for ALS will take place on Saturday, October 29, 2022 at Gambler Ridge Golf Club!

Event Agenda:

11:00 AM Registration and Practice

12:00 PM Shotgun Start

5:30 PM Dinner, Awards, Door Prizes and more!

Register Today!

Come out to Ginopalooza on October 20, 2022 at the Royal to enjoy a celebration of life lived to the max! There will be featured music of Pearl Jam and many others.

Tickets are $25 and all proceeds will benefit The Gino Carosella Fund!

The ALS Chocolate Meltdown Party is back!

Join us Friday, September 23, 2022 at the Adventure Aquarium in Camden, NJ to enjoy more chocolate and candy than you can imagine! And sharks. There will be drinks and food in amongst the the fish tanks. And sharks. There will be the most amazing, crazy, caring individuals coming out to support people living with ALS and their families. And sharks.

Purchase your tickets here! The early bird price is available until August 10.

$275 VIP (discounted 20% to $220)

$125 standard (discounted 20% to $100)

We (and the sharks) are always looking for sponsors! Sponsorship levels from $1,000 to $25,000 are available. Find out more here!

People living with ALS will receive 2 complimentary VIP tickets to attend.

This is a 21+ only event.

The ALS Hope Foundation is pleased to present the 15th Annual Hope Walks for ALS on September 18, 2022 at Temple University’s Ambler Campus! In-person!!

This event provides much needed funds to support the clinical, research and educational efforts of the ALS Hope Foundation and is the only walk in the area that supports the work of the ALS Hope Foundation and the team at the MDA/ALS Center of Hope.

Our team wants to see your team!

Click here to sign up your team today!

The ALS Hope Foundation is pleased to present the 4th Annual Run for Hope 5K for ALS!

This event will provide much needed funds to support the clinical, research and educational efforts of the ALS Hope Foundation!

We will continue to follow all local, county and state guidelines along the way as safety and health protocols are our highest priority.

Sign up today!

Entry:

Adult (ages 13 and up) early bird pricing before May 15th: $25, pre-race pricing before June 4th: $30 and race day: $35

Children (ages 3-12) early bird pricing before May 15th: $10, pre-race pricing before June 4th: $15, and race day $20

Children 2 and younger: Free

Contact:
Sarah Adickes: sadickes@alshopefoundation.org
Jamey Piggott: jamey@alshopefoundation.org

or 215-568-2426

Come on out Friday, June 3 to The Official Unofficial Lou Gehrig's Day Party at Xfinity Live! - Philadelphia located in the stadium complex across from Citizen’s Bank Park for the largest LG4Day party in the country! Pre-game fun from 3-6 and a watch party from 7-end of game.

All of those living with ALS will be provided FREE parking right at the venue (limited to 15 spaces...reserve ASAP). pALS will receive a minimum of 2 FREE tickets for both the pre-game party (3pm-6pm) and the watch party (7pm-end of game).

Whether you're going to the Phillies game or hanging out with us all night, it's going to be a great night supporting some of the best ALS organizations throughout the country.

Purchase Tickets Today- LG4Day.brownpapertickets.com

The ALS Hope Foundation will be participating in what we hope will be the largest nationwide ALS Bar Crawl ever!

We want to show that when people and groups work together, they can accomplish great things!

We are excited to report that Xfinity Live! will be hosting the Philadelphia crawl! And we will be there!

For more information or to register with the ALS Hope Foundation team, HOPE on TAP, (or your own team) go to this link!

Share your team page with your friends and family to sign up. Start planning your Bar Crawl or join us at XL!

Feel free to reach out to us at info@alshopefoundation.org if you need information on your area or state. We would be glad to help!

Join the Citizens and Police Together & The Abington Township Police Association for their Movember Tailgate & Cornhole Tournament on December 5, 2021 at North Penn VFW.

Pricing Information

Admission: $20

Tournament: $20

For Tickets and more information please contact: capttailgate.eventbrite.com

COVID Precautions will be in place

This year marks the 45th Anniversary of The Last Waltz! The Last Waltz was held on November 25, 1976 by the rock group, The Band. Join us in a performance of the soundtrack by our House Band and local special guests, all while supporting a great cause.

All proceeds of this event will be donated to The Gino Carosella ALS Hope Foundation Fund. Gino passed away in February 2021 after a courageous battle with ALS and we are honored to be able to put this concert in his honor. Can't make the show? Visit https://www.alshf.org/donate and donate directly in Gino's name!

The Last Waltz house band consists of Dylan Blazick on guitar, Ron Shaumburg on piano/keys, Nate Sims on bass and Steve Horn on drums. Special thanks to Len Blazick for organizing this event and to the special musical guests who are performing throughout the night.

Proof of vaccination or negative test result (within 72 hours) is required for entry.

Tickets available at theroyalglenside.com/tickets

The Royal's Health & Safety protocols can be found at: theroyalglenside.com/healthandsafety

Parking:
Guests of The Royal are permitted to park in the parking lot of St. Paul's Lutheran Church. Enter the lot on Mt. Carmel Avenue, on the other side of Easton Road. Parking is available at the Glenside Train Station, but at your own risk as we are not associated or contracted with SEPTA. Street parking is also available.

Mary Holt-Paolone, MSRN, our Mental Health Specialist, is hosting virtual Caregiver Support Meetings every Tuesday at 2:00 PM EST using Zoom.

To register for this group, please click here to register or email Mary at mary@maryfholt.com and put “Virtual Support Group for Caregivers” in the subject line.

You can join by video on your computer or smartphone, or you can call directly in.

In addition, Mary is also available by phone at 610.733.5573 or email listed above.

Tuesday, November 30, 2021 is Giving Tuesday!

Giving Tuesday is a global movement that encourages you to make a difference this holiday season!

This year we will be highlighting the Gino Carosella Fund which helps support physical therapy home evaluations and in-home counseling services.

Here are ways you can help:

• Make a donation at www.alshf.org/donate

• Create a Facebook Fundraiser

It is with great sadness that we announce the cancellation of our already rescheduled Surf & Turf Gala for ALS at Four Seasons Total Landscaping. Please reach out to sadickes@alshopefoundation.org if you have not received an email from one of our teammates.

The ALS Hope Foundation is pleased to present the 14th Annual Hope Walks for ALS! This event will provide much needed funds to support the clinical, research and educational efforts of the ALS Hope Foundation!

You may be aware that Hurricane Ida swept through the region last week leaving a path of destruction in her wake. Multiple tornados tore through the area, and unfortunately Temple University's Ambler Campus took a direct hit.

The ALS Hope Foundation Team was unable to find another location that can accommodate us this weekend and because of this we will be moving the entire event to be virtual.

The walk will still take place on September 12, 2021 beginning at 10:00am!

We will be coming to you via Facebook Live at the times listed below!
Tune in on Facebook to watch and comment to let us know you are there!

10:00am - Welcome message with the Fosco Fighters.
10:30am - Kids activities with Hope Loves Company.
11:15am - Music from Kevin Buzby and Rounding Third.
12:00pm - Closing message with team Always Loving Stacy.

How else can I participate?
We want to see your photos! We will post the first photo of each of these areas below, then you post in the comments. Or send your photo to Sarah Adickes at email sadickes@alshopefoundation.org or text 215-568-2426.

Cutest pet contest - We want to see your adorable pets taking part in the walk! A mailman will choose the winner so make sure your dog (or cat, or bird, or turtle, or fish, etc) looks sweet!

Unique place contest - We want to see where YOU are walking or rolling! Since we can't be together in person, sharing will bring us all closer!

Team video or photo - We want to hear why you are walking and who you are walking for. Send a team video or picture and include a message to other walkers!
If you are able to send these in to Sarah Adickes on Saturday, she can schedule them to be presented during the walk!

Don't forget to tag us on Facebook (@ALSHopeFoundation), Instagram (@alshopefoundation) or Twitter (@ALSHF)! #ALSHopeFoundation

What about those fabulous Raffle Baskets?
Just like everything else this year our Raffle Baskets are online! Check out our amazing raffle baskets here!

Sign up today! https://www.givesignup.org/Race/PA/Ambler/14thAnnualHopeWalksforALS

Instructions on how to Sign Up or Donate Here .

Entry:

Adult $25

Children (Ages 3-12) $10

Children 2 and under Free