Thank you Mike and Nicole McDevitt and Joe McGinty, Team IAMAGAINSTALS, for representing the ALS Hope Foundation and spreading ALS awareness at Tri the Wildwoods in Wildwood, NJ on August 29th. Way to go Joe on placing 4th in your age group!
Join our friends at Hope Loves Company for Camp HLC at Frost Valley YMCA Claryville, NY
Camp takes place October 16th through October 18th, 2015. Registration is open until Oct. 2nd. It’s free to children and young adults who have family members living with ALS.
Sign up today! www.HopeLovesCompany.com
CLICK HERE to watch a video of the ALS Hope Foundation's Ice Bucket Challenge in LOVE Park, featuring an interview with Dr. Terry Heiman-Patterson. Thank you to everyone who took the challenge with us, to CBS Philly for their wonderful coverage, and to 7-11 and the Home Depot for their donations of ice and buckets!
On Tuesday August 4th, the clinic team at the MDA/ALS Center of Hope accepted the ice bucket challenge! They got creative with their ice bucket alternative and challenged other clinic teams to take the challenge
#EveryAugustUntilaCure
Inspirational PALS Pete Frates and Pat Quinn officially opened the 2015 Ice Bucket Challenge on July 31 in Fenway Park! #EveryAugustUntilACure
Get ready for the ALS Hope Foundation's special kick off! Who will you challenge this year?
Joshua Tkachuk
The ALS Hope Foundation is grateful for the continued support of the Tkachuk family. The Tkachuks tragically lost their son and brother Joshua to ALS at the young age of 18. We were privileged to care for Joshua at the MDA/ALS Center of Hope.
Joshua's sister Jessica is getting married on September 12, 2015. She has asked that her guests please donate to the Joshua Tkachuk Memorial Fund in lieu of gifts. (You can make a donation here). These funds will support the MDA/ALS Center of Hope, where Joshua was loved and cared for. Below is a message from Joshua's family.
We were blessed with Joshua on October 6, 1993, and ALS took him away on June 5, 2012. This was the most heart-breaking day of our lives… next to the one where they told us that he had ALS and he wasn’t going to survive.
Before Josh became ill, he was an active, hard-working teenager who loved being around his family and friends. He was grateful for the simple things in life, like having his own room and going out to dinner. He enjoyed our family vacations visiting his grandmother in Florida, and playing rounds upon rounds of miniature golf in Ocean City, Maryland.
He liked being outdoors, working in the yard or taking walks in the woods. He loved to play basketball and golf. He was on the bowling team at school. He was very good at video games, board games and WII bowling. (He could bowl a strike from another room!) He enjoyed watching movies, listening to music, and playing his bass guitar. He had recently gotten his learner’s permit and was looking forward to getting his driver’s license.
He was a senior at W.B. Saul High School for Agriculture where he was studying to become a landscaper. After graduation he planned on going into business with his best friend, Nick. (Nick has since joined the Navy.)
When he wasn’t in school, Joshua spent a great deal of time working at the golf course in the Green Valley Country Club, in Lafayette Hill, Pa.
Joshua was such a treasure. Not only was he a wonderful son, but he was an amazing human being. He was so loving, thoughtful, and kind. He was humble, generous, and caring. He was a dear brother, grandson, nephew, and cousin. He was a best friend, an honor roll student, a good neighbor, and a great co-worker.
Even though Joshua was just 18, he bravely faced and fought the disease with such incredible strength and determination. And even in the midst of it all he was still able to smile.
Joshua was, and still is the most courageous young man we have ever known and no words could ever express how much we love him, how much we miss him, and how utterly broken our hearts are having lost him to ALS.
Dr. Terry Heiman-Patterson poses with auction items; photo credit: Robert E. Patterson
On Thursday, July 23rd, the ALS Hope Foundation and the Media Theatre presented "A Swingin' Concert for Hope." This event featured local crooner Jeff Coon and the Summer Club along with a 17-piece big band, plus special musical guests.
Frank and Ramona Gwynn pose with Hope Ambassador Bernie Parent; Photo Credit: Robert E. Patterson
Before the show, we enjoyed a VIP dinner with a celebrity meet-and-greet featuring our Hope Ambassador, Flyers legend Bernie Parent. (Thanks, Bernie!) We were also joined by special guest Sue Serio from Fox 29 News, who generously auctioned off an on-air appearance with her during a future weather segment.
During the event, we hosted wonderful silent auction that featured two Apple iWatches, as well as items generously donated by Josh Groban, Cole Hamels, Troy Polamalu of the Pittsburgh Steelers, Ina Garten (Barefoot Contessa), the Flyers, the 76ers, the Union, Painting with a Twist, Del Frisco's Steakhouse, the Walnut Street Theatre, the Media Theatre, and more!
"A Swingin' Concert for Hope" was a huge success and raised over $55,000! Thanks to our evening's sponsors, Frank and Ramona Gwynn, 100% of the proceeds went to the ALS Hope Foundation.
Thank you to everyone who came out to the Media Theatre for a great night and saw a fantastic show! Thanks also to our many supporters, sponsors, volunteers, and donors. We are grateful to all who contributed. It paid off in a big way!
Thanks to our auction donors!
Sue Serio
Philadelphia 76ers
Josh Groban and the Find Your Light Foundation
Ina Garten, Barefoot Contessa
Philadelphia Flyers
The Hamels Foundation
The Philadelphia Union
Hooters (Philadelphia Music Group)
Ramona Gwynn
Delfrisco's Steak House
Painting with a Twist CC
Total Wine and More Cherry Hill
Isos Jewelry
Panera Bread
Target
The Media Theatre
The Walnut Street Theatre
Cakes and Candies by Mary Ellen
Spasso
Thanks to our generous sponsors!
Frank and Ramona Gwynn
IMC Construction
Eileen Vass
Walter Korn
Offit Kurman
Patterson, Kleher, Harison, Harvey, Branzburg
Monarch
On Monday July 20th, Jackie Nicodemo from the ALS Hope Foundation attended a check presentation at Borough Hall in Brooklawn, New Jersey. The funds received came from the 2nd Annual Tom MacAdams and Eileen Vitola 5k Run & 1 Mile Walk, which took place on April 11th, 2015.
Event Chairperson Julie McCleary, alongside Dee and Colin MacAdams, presented the ALS Hope Foundation with a check for $23,000. Along with last year's funds, MacAdams and Vitola event has raised over $48,000 in just two years!
All the funds raised by this event will support the ALS Hope Foundation's programs and the MDA/ALS Center of Hope. These funds make a difference to people living with ALS in our region and beyond!
The ALS Hope Foundation would like to thank everyone who participated in the Tom MacAdams and Eileen Vitola Run/Walk, especially our organizers. Your efforts paid off tremendously. We are grateful for your commitment to fighting ALS!
The following is a press release shared by all the organizations in the North American network Collaboration for a Cure. The ALS Hope Foundation is proud to participate in Collaboration for a Cure and to be a part of the effort to bring organizations together in service of our common goal: to make a difference in the lives of people with ALS. We are announcing the Ice Bucket Challenge's return this August - and every August until a cure. Learn more by reading below and visiting www.alsicebucketchallenge.org!
Two ALS patients who co-founded the ALS Ice Bucket Challenge, together with 15 ALS organizations, announced today a collaborative effort to launch the Challenge again this August. The ALS Ice Bucket Challenge became a global phenomenon in 2014 and raised $220 million globally for ALS research and patient care.
Amyotrophic lateral sclerosis (ALS), also known as motor neuron disease (MND), is a progressive neurodegenerative disease that leads to paralysis, due to the death of motor neurons in the spinal cord and brain. There is no known cure for the disease. However, as a result of the ALS Ice Bucket Challenge in 2014 significant new investments in research on the causes of and potential treatments for ALS have been made.
Co-founders Pat Quinn and Pete Frates will kick off this year’s ALS Ice Bucket Challenge on July 31 in Boston. The two ALS patients, their families and a steering committee of nonprofits have been working together since last year and are putting the final touches on a special launch event. A dedicated website – www.alsicebucketchallenge.org – was unveiled today to inform people about ALS and the ALS Ice Bucket Challenge, and to make it easier for them to donate to an ALS organization of their choosing.
“Last year gave the ALS community hope for the first time in a long time,” said Quinn, who lives in Yonkers, N.Y., and was diagnosed with ALS two years ago. “But we still need the public’s help to keep the momentum going. We plan to do the ALS Ice Bucket Challenge again this August and every August until we find a cure.”
The ALS Ice Bucket Challenge is a viral video phenomenon that soaked the nation and the world for the first time in August 2014. A person dumps a bucket of ice and water over his or her head, challenging three friends to either do the same, donate to the ALS charity of their choice, or both. More than 17 million videos of people taking the challenge were posted on Facebook alone last year. These videos were watched by 440 million people a total of 10 billion times.
“The ALS Ice Bucket Challenge represents all that’s great about this country – it’s about fun, friends, family, and it makes a difference to all of us living with ALS,” said Frates, who lives in Beverly, Mass., and was diagnosed with ALS when he was 27 years old. “I am so proud that ALS organizations have come together to support me and my family and the whole ALS community as we unite to launch this year’s ALS Ice Bucket Challenge.”
All told, the ALS Ice Bucket Challenge led to more than $220 million in donations to ALS-oriented nonprofits, including some of those leading this year’s collaborative launch effort. Much of the donations raised by ALS nonprofits during last year’s challenge has already been invested or allocated to support new ALS research efforts, increased advocacy, and expanded and improved local care and services for people diagnosed with ALS, their families, and care providers.
This announcement represents the largest coordinated effort of ALS nonprofits to date, and many of the organizations hope to work more closely together not only on awareness and fundraising activities such as the ALS Ice Bucket Challenge, but also on providing crucial patient services and accelerating ALS research.
The ALSIceBucketChallenge.org website was created pro bono by TBWA\Chiat\Day in New York City.
Participating ALS Organizations: The ALS Association, ALS Canada, ALS Hope Foundation, ALS Therapy Development Institute, ALS Worldwide, Answer ALS, International Alliance of ALS/MND Associations, Iron Horse Foundation, Les Turner Foundation, Muscular Dystrophy Association, Prize4Life, Project A.L.S., Target ALS, Team Gleason, and The Robert Packard Center for ALS Research.
About TBWA\Chiat\Day: TBWA\Chiat\Day New York is part of the TBWA Worldwide network. TBWA Worldwide (www.tbwa.com) is a top ten ranked global advertising network that holds Disruption® at its core to develop business-changing ideas for the brands it works with. TBWA has 11,100 employees across 323 offices in 97 countries and also includes brands such as AUDITOIRE, BEING, Digital Arts Network (DAN), eg+ worldwide, The Integer Group®, TBWA\Media Arts Lab and TBWA\WorldHealth. TBWA’s global clients include Accenture, adidas, Apple, Energizer, Gatorade, GSK, Henkel, Kraft, McDonald’s, Michelin, Nissan, Pernod Ricard, Pfizer, Standard Chartered Bank, Singapore Airlines, Sotheby’s and Vichy. Follow TBWA on Twitter and Instagram and like us on Facebook.
The ALS Hope Foundation is a non-profit corporation under section 501(c)(3) of the US Internal Revenue Code EIN 23-3010389
United Way of Greater Philadelphia and Southern New Jersey Donor Choice Number: 13004
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Original build by Rachel Patterson
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