Group Led Research

The Desire for Pre Symptomatic Treatment in the At Risk Genetic ALS and FTD Community

Video Explainer for Desire For Treatment Survey: https://youtu.be/gABRQEQ14Bk

Estimates of C9 or f72 Statistics drawn from prior publications including estimated life expectancy for genetic carriers, estimated incidence of C9 or f72 ALS and FTD, Estimated genetic carrier and at risk populations and others

Video Explainer for C9 Estimates Poster: https://youtu.be/dWYxBIPSPx4

Genetic Focused Research You May be Eligible For

Available research studies

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