Founded in 1999 by Terry Heiman-Patterson, MD, and Jeffrey Deitch, PhD, the ALS Hope Foundation provides funding for the MDA/ALS Center of Hope, the first multidisciplinary ALS clinic in the country, and the Neuromuscular Research Laboratory at Temple University College of Medicine. The Foundation also provides educational events to inform people living with ALS and the public about ALS research. The ALS Hope Foundation funds local and international efforts to find the cause and cure of ALS. This much needed support is generated through fundraisers and private donations.

We are honored to have spent more than 19 years serving the ALS community and are committed to continuing our work until there is a cure. 


The mission of the ALS Hope Foundation is to provide long-term support to:

  1. clinical centers of excellence for the care and treatment of people with ALS,

  2. clinical and basic research programs leading to a cure,

  3. support programs for people with ALS and their caregivers that optimize care and promote independence, and

  4. programs that promote education about diagnosis, treatment, and care.

The ALS Hope Foundation is working to:

  • Establish a team of talented and imaginative scientists who will work cooperatively to accelerate ALS research.

  • Provide these researchers with stable funding to ensure that ALS research continues uninterrupted.

  • Provide funding for innovative, groundbreaking research across the country where traditional funding sources are not forthcoming.

Primarily, we fund clinical research and education at the nationally acclaimed MDA/ALS Center of Hope at Temple University School of Medicine. This clinic has been providing a multidisciplinary approach to care for people with ALS and their families in the Greater Philadelphia metropolitan area since 1984. The ALS Hope Foundation is working to ensure that this clinic can continue to offer access to clinical trials of promising therapeutics and maintain its work at the forefront of clinical ALS research.

The ALS Hope Foundation also maintains an excellent team of scientists focused on ALS, operating out of the ALS Basic Research Laboratory at Temple University School of Medicine. This laboratory relies on its collaborations with other scientists to attack ALS from new and innovative directions.

In September of 2011, we launched the Philadelphia Institute of Neurodegenerative Disorders (PhIND). With your help, we have created a unique research effort that stresses collaboration and interaction between scientists, between academic institutions and with the biotechnology and pharmaceutical industry. We will provide a stable laboratory environment so that experienced, innovative scientists can work non-stop to defeat ALS.