ALS Hope Foundation
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ALS Hope Foundation
  • What Is ALS?/
  • About ALS Hope /
    • About The Foundation
    • Foundation Staff
    • Programs and Activities
    • Board of Directors
    • Financial Information
    • Funds
  • ALS Center of Hope/
    • About The Center Of Hope
    • Clinic Staff
    • Assistive Technology
    • Stories of Hope
  • Research/
    • Basic Lab Research
    • Clinical Research
    • Research Staff
    • Clinical Trial and Research Resources
    • FALS Research
  • Events/
    • Upcoming Events
    • Become a Volunteer!
    • Gala of Hope 2025
  • News Blog/
  • Resources/
    • Virtual Support Groups
    • True North Men's Group
    • PALS Resources
    • Assistive Technology
    • Home and Daily Living Guide
    • Veterans ALS Action Committee
    • End the Legacy
    • Hope In Action
  • Donate/
ALS Hope Foundation

Hope Is On The Horizon

ARCHIVED NEWSLETTERS

ALS Hope Foundation
  • What Is ALS?/
  • About ALS Hope /
    • About The Foundation
    • Foundation Staff
    • Programs and Activities
    • Board of Directors
    • Financial Information
    • Funds
  • ALS Center of Hope/
    • About The Center Of Hope
    • Clinic Staff
    • Assistive Technology
    • Stories of Hope
  • Research/
    • Basic Lab Research
    • Clinical Research
    • Research Staff
    • Clinical Trial and Research Resources
    • FALS Research
  • Events/
    • Upcoming Events
    • Become a Volunteer!
    • Gala of Hope 2025
  • News Blog/
  • Resources/
    • Virtual Support Groups
    • True North Men's Group
    • PALS Resources
    • Assistive Technology
    • Home and Daily Living Guide
    • Veterans ALS Action Committee
    • End the Legacy
    • Hope In Action
  • Donate/

2023 Newsletters

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August 2023 Sept 2023 Oct/Nov 2023 Dec 2023

2022 Newsletters

Jan 2022 Feb 2022 March 2022 April 2022 May/June 2022

July 2022 Aug 2022 Sept 2022 Oct 2022 Nov 2022 Dec 2022

2021 Newsletters

Jan 2021 Feb 2021 March 2021 April 2021 May 2021 June 2021

July 2021 Aug 2021 Sept 2021 Oct 2021 Nov 2021 Dec 2021

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Aug 2020 Sept 2020 Oct 2020 Nov 2020 Dec 2020

2019 Newsletters

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July 2019 August 2019 Sept 2019 Oct 2019 Nov 2019 Winter 2019/20

2018 Newsletters

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July 2018 August 2018 Sept 2018 Oct 2018 Winter 2018

2017 Newsletters

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Oct 2017 Nov 2017 Dec 2017

2016 Newsletters

Winter ‘15/6 March 2016 April 2016 May 2016

June 2016 July 2016 Fall 2016 Winter ‘16/17

2015 Newsletters

Apr 2015 May 2015 Jul 2015 Sep 2015 Oct2015 Nov 2015

 

  • What Is ALS?/
  • About ALS Hope /
    • About The Foundation
    • Foundation Staff
    • Programs and Activities
    • Board of Directors
    • Financial Information
    • Funds
  • ALS Center of Hope/
    • About The Center Of Hope
    • Clinic Staff
    • Assistive Technology
    • Stories of Hope
  • Research/
    • Basic Lab Research
    • Clinical Research
    • Research Staff
    • Clinical Trial and Research Resources
    • FALS Research
  • Events/
    • Upcoming Events
    • Become a Volunteer!
    • Gala of Hope 2025
  • News Blog/
  • Resources/
    • Virtual Support Groups
    • True North Men's Group
    • PALS Resources
    • Assistive Technology
    • Home and Daily Living Guide
    • Veterans ALS Action Committee
    • End the Legacy
    • Hope In Action
  • Donate/

ALS Hope Foundation

The ALS Hope Foundation is committed to helping people with ALS today and dedicated to finding a cure for those of the future.

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Thank you to everyone who supported this year’s Season of Hope and to Nona’s Crew! Their story and family have served as an inspiration to us all 💙

❄️ If you haven’t donated yet there’s still time! Check out the link in our
Thank you to everyone who supported this year’s Season of Hope and to Nona’s Crew! Their story and family have served as an inspiration to us all 💙 ❄️ If you haven’t donated yet there’s still time! Check out the link in our bio or see the QR Code on this post.
✨Mark your calendar for the 8th Annual Gala of Hope! More details to come! 

Donations are welcome on charity.pledgeit.org/gala-of-hope
Tickets will be on sale soon!
✨Mark your calendar for the 8th Annual Gala of Hope! More details to come! Donations are welcome on charity.pledgeit.org/gala-of-hope Tickets will be on sale soon!
‼️Wendy’s Wish 911 and the ALS Hope Foundation are collecting data about the experiences of people living with ALS and their caregivers when interacting with emergency medical services (EMS) and emergency rooms (ER).

🚑 Your feedback will help
‼️Wendy’s Wish 911 and the ALS Hope Foundation are collecting data about the experiences of people living with ALS and their caregivers when interacting with emergency medical services (EMS) and emergency rooms (ER). 🚑 Your feedback will help further the mission of WW911 guide improvements in training, preparedness, and patient-centered care for emergency responders and hospital personnel. Complete the survey here ➡️ https://docs.google.com/forms/d/e/1FAIpQLSfZ50mLLsLXBcLcYhWDWCl3LiSO9FKriQnyyY_M48KUkut2Aw/viewform To learn more about Wendy and her initiative please visit wendyswish911.com!
Here’s a short review reel from the Allied Health Professionals Forum! The team really stepped it up this year! Honored to be a part of this amazing educational event!!
This holiday season, share the gift of Hope! We’re honored to feature the Caldwell family’s inspiring story of Hope in this year’s campaign. Scroll to read their personal letter and meet Nona’s Crew! 

❄️ If you’d like t
This holiday season, share the gift of Hope! We’re honored to feature the Caldwell family’s inspiring story of Hope in this year’s campaign. Scroll to read their personal letter and meet Nona’s Crew! ❄️ If you’d like to donate to this year’s season of Hope please see the link in our bio or use the link below! givebutter.com/soh2025
Our executive director, Jamey traded in his director cap to become a BCI research participant! Here he is testing out our P300 System. This system allows patients to communicate using their very own brain waves! 🧠 🔬 See the link in our bio, or copy
Our executive director, Jamey traded in his director cap to become a BCI research participant! Here he is testing out our P300 System. This system allows patients to communicate using their very own brain waves! 🧠 🔬 See the link in our bio, or copy the link below to become a BCI research participant like Jamey. Even just one participant can provide our team with valuable data! https://forms.gle/RjDH8f47rGcgEKN68 #alshope #bciresearch #braincomputerinterface
The International Alliance of ALS/MND Associations Meeting was held in Toronto, Canada, on November 29-30, 2025. Jamey Piggott and John Furey presented on the True North Men’s Group and Sara Feldman received a Thank You for her years of service.
❄️Our annual Season of Hope card is in the mail! Check your mailboxes to see if you received yours!

💙This year, our card features the story of the Caldwell Family. Their resilience and hope is an inspiration to all of us this season! Stay tuned for
❄️Our annual Season of Hope card is in the mail! Check your mailboxes to see if you received yours! 💙This year, our card features the story of the Caldwell Family. Their resilience and hope is an inspiration to all of us this season! Stay tuned for an inside look into the card and to meet Nona’s Crew 🌟 💛 Use the link in our bio to give the gift of hope this season
We just spent an inspiring week at the International ALS/MND Meetings! First, the Alliance of ALS/MND Associations Meeting; then the Allied Professionals Forum; and finally, the International Symposium on ALS/MND. We will be sharing our experiences a
We just spent an inspiring week at the International ALS/MND Meetings! First, the Alliance of ALS/MND Associations Meeting; then the Allied Professionals Forum; and finally, the International Symposium on ALS/MND. We will be sharing our experiences and thoughts with you over the next month and in the December newsletter! #alsmndwithoutborders #alsmndsymp
Day 2 of the Allied Professionals Forum opened with ALS Warrior Wendy Hendrickson and Mary Holt-Paolone, MSRN, introducing Wendy’s Wish 911 to an international audience. What a positive response they received with many wanting to duplicate it i
Day 2 of the Allied Professionals Forum opened with ALS Warrior Wendy Hendrickson and Mary Holt-Paolone, MSRN, introducing Wendy’s Wish 911 to an international audience. What a positive response they received with many wanting to duplicate it in their own countries! You rock!! #alswarrior #wendyswish911 @als.mndalliance @wendyswish911
Thank you to everyone who supported this year’s Season of Hope and to Nona’s Crew! Their story and family have served as an inspiration to us all 💙

❄️ If you haven’t donated yet there’s still time! Check out the link in our ✨Mark your calendar for the 8th Annual Gala of Hope! More details to come! 

Donations are welcome on charity.pledgeit.org/gala-of-hope
Tickets will be on sale soon! ‼️Wendy’s Wish 911 and the ALS Hope Foundation are collecting data about the experiences of people living with ALS and their caregivers when interacting with emergency medical services (EMS) and emergency rooms (ER).

🚑 Your feedback will help
Here’s a short review reel from the Allied Health Professionals Forum! The team really stepped it up this year! Honored to be a part of this amazing educational event!!
This holiday season, share the gift of Hope! We’re honored to feature the Caldwell family’s inspiring story of Hope in this year’s campaign. Scroll to read their personal letter and meet Nona’s Crew! 

❄️ If you’d like t Our executive director, Jamey traded in his director cap to become a BCI research participant! Here he is testing out our P300 System. This system allows patients to communicate using their very own brain waves! 🧠 🔬 See the link in our bio, or copy
The International Alliance of ALS/MND Associations Meeting was held in Toronto, Canada, on November 29-30, 2025. Jamey Piggott and John Furey presented on the True North Men’s Group and Sara Feldman received a Thank You for her years of service
❄️Our annual Season of Hope card is in the mail! Check your mailboxes to see if you received yours!

💙This year, our card features the story of the Caldwell Family. Their resilience and hope is an inspiration to all of us this season! Stay tuned for We just spent an inspiring week at the International ALS/MND Meetings! First, the Alliance of ALS/MND Associations Meeting; then the Allied Professionals Forum; and finally, the International Symposium on ALS/MND. We will be sharing our experiences a Day 2 of the Allied Professionals Forum opened with ALS Warrior Wendy Hendrickson and Mary Holt-Paolone, MSRN, introducing Wendy’s Wish 911 to an international audience. What a positive response they received with many wanting to duplicate it i

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© The ALS Hope Foundation, 2025
550 Pinetown Road, Suite 120, Fort Washington, PA 19034 
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