ARCHIVED NEWSLETTERS

The ALS Hope Foundation was humbled to be part of the annual “Quinn for the Win” Ice Bucket Challenge at Empire City Casino in Yonkers, NY, honoring the LEGACY of the OG, Pat Quinn, and everyone who has been impacted by ALS. The IBC continues to remind us what can happen when a community comes together. The incredible legacy created by Pat Quinn and Pete Frates continues on in special ways. It also reminds us that there is still work to do with collaboration, advocacy, and a shared commitment to find a solution or a cure. Thank you to Big Pat, the Quinn family, and Larry Kaplan for all your advocacy and awareness. We appreciate all that you do!

In April, Dr. Terry Heiman-Patterson and PAC member Dr. Stacy Lewin-Farber traveled to Capitol Hill to advocate for the passing of this bill. They advocated for improving access and quality of care for people living with ALS and advancing federal funding for ALS research. The Senate’s passing of ACT for ALS Reauthorization is a major win for the ALS community. We are one step closer, but the battle is not yet won. After lawmakers return in September, legislation will be passed onto the President. We are pleased with the momentum being created, but ALS still demands urgency. Today has shown us that together, we can make a difference. #actforals #alsadvocacy #alscollaboration

Become a volunteer for our 19th Annual Hope Walks for ALS! ☀️ Join this day of family-friendly fun, and support us with registration, parking, the Kidzone, photography, raffle sales, and more! To become a volunteer, complete the form via the link in our bio or at alshf.org/events!

This weekend, ALS Hope North had the opportunity to host 11 people living with ALS along with a family member or caregiver to attend the Zac Brown Band concert at Fenway Park. We are incredibly grateful for John Hopkins and Hop On A Cure for working in collaboration with us to create this memorable experience for everyone who attended. A special shout out to the team at Fenway Park for prioritizing ADA seating so our group could enjoy the show from the front row! We are so thankful for those who support ALS Hope Foundation’s mission to make a difference in the lives of those living with ALS and their families. Thank you all!

Happy World Chocolate Day! If you love chocolate, be sure to join us at the ALS Chocolate Meltdown Party! 🍫 Enjoy a variety of vendors and indulge in endless candy and sweets, all against the stunning backdrop of the Adventure Aquarium! 🍫 All proceeds from this event will go towards our fight against ALS! Visit alschocolatemeltdown.com to secure your tickets today!

Our partners at Hope Loves Company are putting together an amazing resource and space to support families whose lives have been touched by ALS. 🩷💙 Beyond the Bunk Hangout is a free monthly virtual space for kids and teens impacted by ALS to connect in community and find genuine support. These year-round sessions are guided by educated and trusted professionals, including trained Child Life Specialists, certified caregiving consultants, and mental health professionals. Drawing on lived ALS experience and specialized training in grief and trauma, our team provides a safe and supportive environment for age-appropriate conversations and activities focused on emotional wellness. Ages 6–10 | 1st Monday of each month | 7:00–8:00 PM ET Ages 11–13 | 2nd Monday of each month | 7:00–8:00 PM ET Ages 14–17 | 1st Monday of each month | 8:10–9:10 PM ET 🩷💙 Visit this link for more information about Beyond the Bunk: https://www.hopelovescompany.org/beyondthebunk Visit this link to register for a Hangout Session: https://form.jotform.com/HopeLovesCompanyInc/beyond-the-bunk-hangout-sessions-si