Veteran ALS Action Committee (VAAC)

 
 

Who is the VAAC?

The Veteran ALS Action Committee is a team comprised of foundation members, advocates, caregivers, & Veterans living with ALS. The VAAC is dedicated to increasing Veteran awareness of and participation in clinical trials and research through education and outreach.

 
 
 

Our Goals

Awareness

Raise awareness of clinical trials and research opportunities that are available to Veterans impacted by ALS.

Education

Educate Veterans and healthcare providers on the clinical trial process and the roles that each person plays.

Collaboration

Bridge the gap between the clinical trials world and Veterans to create positive change in the ALS community.

 
 

“Introducing & Exploring ALS VA Handbook” Webinar

The “Introducing & Exploring the ALS VA Handbook” webinar was held on November 20th, 2025. The discussion reviewed the ALS VA Handbook with contributions from Dr. Ileana Howard and Ms. Leah Darling. Click the button below to view the recording. Passcode is: @Uv5UqxT

Webinar Recording | Passcode: @Uv5UqxT
The ALS VA Handbook PDF
 

Resources

Your ALS Guide: a comprehensive online guide to living with ALS

ALS TDI Trial Navigator: A free resource from the ALS Therapy Development Institute for finding clinical trials

I AM ALS Signal: A free resource from I AM ALS for finding clinical trials

Les Turner Clinical Trial Participation Guidebook: An online guide for what to expect during the clinical trial process


Contact: info@alsveterans.net