Veteran ALS Action Committee (VAAC)
Who is the VAAC?
The Veteran ALS Action Committee is a team comprised of foundation members, advocates, caregivers, & Veterans living with ALS. The VAAC is dedicated to increasing Veteran awareness of and participation in clinical trials and research through education and outreach.
Our Goals
Awareness
Raise awareness of clinical trials and research opportunities that are available to Veterans impacted by ALS.
Education
Educate Veterans and healthcare providers on the clinical trial process and the roles that each person plays.
Collaboration
Bridge the gap between the clinical trials world and Veterans to create positive change in the ALS community.
“Observational Trials” Webinar
February 26, 2026 @ 7pm est via Zoom
Join members of the Veteran ALS Action Committee as we discuss observational trials, how to participate, and hear stories from participants. Use the button below and fill out the form to sign up. You will receive a Zoom Link the week of the event.
“Introducing & Exploring ALS VA Handbook” Webinar
The “Introducing & Exploring the ALS VA Handbook” webinar was held on November 20th, 2025. The discussion reviewed the ALS VA Handbook with contributions from Dr. Ileana Howard and Ms. Leah Darling. Click the button below to view the recording. Passcode is: @Uv5UqxT
International Symposium on ALS/MND Posters
The VAAC presented at the 36th International Symposium on ALS/MND in San Diego this year.
Please see the buttons below to view and download the presented posters!
Resources
Your ALS Guide: a comprehensive online guide to living with ALS
ALS TDI Trial Navigator: A free resource from the ALS Therapy Development Institute for finding clinical trials
I AM ALS Signal: A free resource from I AM ALS for finding clinical trials
Les Turner Clinical Trial Participation Guidebook: An online guide for what to expect during the clinical trial process
Contact: info@alsveterans.net
