The ALS Hope Foundation has generated this list to help people with ALS, their caregivers, and family members to pursue information, research, news, and community. These links are checked on a regular basis, but please email us at info@alshopefoundation.org if any are inoperable.

ALS Hope Foundation Educational Video Series

Visit the YouTube playlist

     Current entries in the series:

Guides For Daily Living From The Center Of Hope Staff

Adaptive Solutions to Maintain Independence             Mark Goren, MS, OTR/L, CHT

Emergency Preparedness Guidelines for People with ALS and Their Families                                  Alisa Brownlee, ATP, Sara Feldman, DPT, ATP, Latoya Weaver, PSC

Symptom Management for PALS                                     MDA/ALS Center of Hope Team

Tips for Holiday Eating                                                       Marcie Amerstein, RD, LDN

Coping With Holiday Stress                                             Mary Paolone, MSRN

Communities And Forums For PALS

ALS Forums

The ALS support forum is an all-volunteer driven resource provided free of charge to help anyone directly or indirectly affected by ALS and MND (also known as Lou Gehrig's disease).

International Alliance of ALS/MND Associations

The International Alliance of ALS/MND Associations was founded in 1992 to provide an international community for individual ALS associations from around the world. Their vision is to engage with our members and other organizations to share resources globally, advance awareness, and support PALS worldwide. Their Directory includes contact information for  associations in more than 30 countries.

Patients Like Me

PatientsLikeMe is committed to putting patients first. We do this by providing a better, more effective way for you to share your real-world health experiences in order to help yourself, other patients like you and organizations that focus on your conditions.

Other Resources For PALS And Families

Hope Loves Company

The mission of Hope Loves Company is to provide emotional and educational support to children and young adults who have family members battling ALS. The founder of Hope Loves Company, Jodi O'Donnell Ames, is also the author of the children's book The Stars That Shine, about a little girl who has to cope with a parent who has ALS. Enclosed with each copy of the book are resources for people living with ALS, their families, and their caregivers.

Someone I Love Has ALS: A Family Caregiver Guide

Jodi O'Donnell-Ames of Hope Loves Company teamed up with Dr. Terry Heiman-Patterson and the clinic team at the MDA/ALS Center of Hope, along with other experts, to edit and write Someone I Love Has ALS: A Family Caregiver Guide. The book features chapters with useful information on caregiving, advocacy, services, equipment, and navigating the healthcare system by Dr. Terry Heiman-Patterson, Sara Feldman, LaToya Weaver, and more.

ALS: An Orientation by Eliot Dunsky, MD

Dr Eliot Dunsky was diagnosed with ALS in 2009. Determined to maintain the best quality of life possible—for as long as possible—he extensively researched the condition and its management. ALS: An Orientation offers a practical guide for patients and their families on maximizing quality of life through strategic care and, importantly, coping with the emotional toll the disease can take. A terminal diagnosis simply means savoring to the fullest the life that is still possible.

Movies And Documentaries

I Am Breathing 

Scottish documentary and winner of a British Academy Scotland Award for Best Director.

The Theory of Everything 

Based on the story of Stephen Hawking, winner of the Academy Award for Best Actor.

You’re Not You 

American drama starring Hilary Swank.

Please note: These links are simply meant to be a helpful resource and a starting point! The ALS Hope Foundation has not evaluated and does not maintain the information contained on the sites mentioned here.