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ALS Hope Foundation

The ALS Hope Foundation is committed to helping people with ALS today and dedicated to finding a cure for those of the future.

This National Family Caregivers Month, we recognize and honor those who show up each day with love, strength, and unwavering dedication. 🌻 Caregiving requires patience, compassion, and resilience, often in ways that go unseen. We are deeply grateful for those who give so much of themselves to care for others, and recognize that caregivers deserve care, understanding, and support, too. Thank you for all that you do and the difference you make every day. 💙

The ALS Hope Foundation and Temple team went down to Clearwater for the 2026 Network of Excellence for ALS Annual Meeting! We were so excited to share research our team has been working on all year and learn about all the interesting work our colleagues across the ALS community are doing. Conferences like these are always a fantastic learning experience for us, and we are so thankful to the NEALS Team and the entire ALS community for making important meetings like this possible. We accomplish more together!

🚨 October 28 | First Responders Day 🚨 💙 To all first responders: thank you for answering the call. Together, we can turn knowledge into action and help save lives. Learn more and explore emergency preparedness resources for people living with ALS and caregivers: https://www.wendyswish911.com/resourcepals #FirstRespondersDay #WendysWish911 #ALS Awareness #KnowledgeSavesLives

Earlier this month, stakeholders from our @pcori_org PCORI Institute Funded Engagement Award Program gathered to discuss our project "Convening to Devleop A Patitent Centered Resarch Agenda for ALS." This project developed a skilled community of patients, caregivers, clinicians and others equipped to engage as partners in all phases of patient-centered research with the aim to create a research agenda that prioritizes the needs of people living with this disease and their caregivers. We are so proud of the work our stakeholder group has put into it over the course of this year and are looking forward to sharing the results with ALS Community! #CER #ComparitiveClinicalEffectivenessResearch #ALSHF #ALSResearch

Celebrate National Accordion Month with the ALS Hope Foundation's Ensemble of Hope! The concert is free and open to the public. A free-will donation will be collected to cover venue costs, plus a donation to the ALS Hope Foundation. Also performing will be the Westmont Philharmonia Accordion Orchestra and the Westmont Accordion Club. Concert attendees and participants will enter the school through the entrance located across from parking space #117, in the back of the building. Easiest entrance to the school is from Cuthbert Boulevard. Questions? Please reach out to Joanna Darrow (856-281-4035) acmeaccordion@gmail.com

Haven’t made the caption yet was thinking something like “This past weekend we held the first ever Hope Happy Hour for PALS and CALS, hosted by our Patient Advisory Council. We are honored to be able to create a space where people living with ALS, caregivers, and their friends and family can gather and connect - exactly as they are. We want to extend a huge thank you to everyone who attended and our PAC members for making this event possible. The PAC has already started planning for the next Happy Hour, so stay tuned for more! ✨🍸🥂 #alshopefoundation #hopehappyhour2026

🚨 New Wendy’s Wish 911 Emergency Resources! In an emergency, every minute matters. Understanding ALS can help prevent harmful misunderstandings and ensure safer, more informed care. In partnership with the ALS Hope Foundation, Wendy’s Wish 911 has launched new resources to help people living with ALS (PALS), caregivers (CALS), and first responders better prepare for emergencies. 📌 Explore the resources and help spread the word: https://www.wendyswish911.com/resourcepals Together, we can bridge the knowledge gap and help make emergencies safer for the ALS community. 💙 #WendysWish911 #ALS #ALSAwareness #EmergencyPreparedness #ALSHopeFoundation

For #PTMonth, PT and OT are sharing an informational video on rolling walkers. Thank you!

The entire ALS community is cherishing the life of an incredible light, Brooke Eby. Brooke reshaped the way the world saw ALS. By sharing her life with remarkable honesty, vulnerability, and a signature sense of humor, she brought millions of people into her journey and reminded them that there is a whole person behind a diagnosis. She challenged people to think differently. She inspired them to care more deeply. And through some of the hardest moments imaginable, she still found a way to make people laugh. Our hearts are with Brooke’s family, friends, loved ones, and the entire ALStogether community. Brooke, thank you for sharing your light, your love, and for keeping hope on the horizon for so many. We will continue to fight in your honor—and for everyone ALS has taken from us far too soon. Your legacy will continue. @limpbroozkit #brookeeby #alsadvocacy

MAJOR WIN FOR THE ALS COMMUNITY: ACT FOR ALS PASSES CONGRESS! The Senate just passed the ACT for ALS Reauthorization Act, sending this critical legislation to the President’s desk. This milestone is the result of the advocacy and unwavering determination from people living with ALS, their families, caregivers, and advocates across the country. Today, we celebrate this important step forward and thank the ALS community and members of Congress for coming together to advance legislation that can make a meaningful difference for people living with ALS. Now on to the President’s desk! #ACTforALS #cureALStogether

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© The ALS Hope Foundation, 2026
550 Pinetown Road, Suite 120, Fort Washington, PA 19034
(215) 568-2426
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The ALS Hope Foundation is a non-profit corporation under section 501(c)(3) of the US Internal Revenue Code EIN 23-3010389
United Way of Greater Philadelphia and Southern New Jersey Donor Choice Number: 13004

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