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Hope Is On The Horizon

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17th Annual Research Update and Awards Luncheon - May 6, 2018

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  • What Is ALS?/
  • About ALS Hope /
    • About The Foundation
    • Foundation Staff
    • Programs and Activities
    • Board of Directors
    • Financial Information
    • Funds
  • ALS Center of Hope/
    • About The Center Of Hope
    • Clinic Staff
    • Assistive Technology
    • Stories of Hope
  • Research/
    • Basic Lab Research
    • Clinical Research
    • Research Staff
    • Clinical Trial and Research Resources
    • FALS Research
  • Events/
    • Upcoming Events
    • Become a Volunteer!
    • Gala of Hope 2026
  • News Blog/
  • Resources/
    • Virtual Support Groups
    • True North Men's Group
    • PALS Resources
    • ALS LEAP
    • Assistive Technology
    • Home and Daily Living Guide
    • Veteran ALS Action Committee
    • End the Legacy
    • Hope Loves Company
    • Wendy's Wish 911
    • Hope In Action
  • Donate/

ALS Hope Foundation

The ALS Hope Foundation is committed to helping people with ALS today and dedicated to finding a cure for those of the future.

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Support the OB Army and ALS Research by joining Designer Bag Bingo! In addition to 10 designer bags, there will be several raffle baskets and a 50/50 raffle during the event! 

Designer Bag Bingo Details:
📅 Saturday, October 10, 2026
📍 Garrettford-
Support the OB Army and ALS Research by joining Designer Bag Bingo! In addition to 10 designer bags, there will be several raffle baskets and a 50/50 raffle during the event! Designer Bag Bingo Details: 📅 Saturday, October 10, 2026 📍 Garrettford-Drexel Hill Fire Company, Drexel Hill, PA 19026 🚪 Doors open at 6:00 PM 🎟️ Bingo begins at 6:30 PM 🍷 BYOB 🍕 Bring your own food/snacks Visit the link to purchase tickets: https://www.facebook.com/events/s/duck-als-designer-bag-bingo/1012937608138697/?mibextid=wwXIfr&rdid=pWIJIFdHw9nrzUG3&share_url=https%3A%2F%2Fwww.facebook.com%2Fshare%2F1Er9GVAsgn%2F%3Fmibextid%3DwwXIfr#
Encouraging news for the FUS-ALS community. Otsuka and Ionis Pharmaceuticals have announced positive topline results from the Phase 3 FUSION trial of ulefnersen, an investigational RNA-targeted medicine for FUS-ALS, a rare, often rapidly progressive
Encouraging news for the FUS-ALS community. Otsuka and Ionis Pharmaceuticals have announced positive topline results from the Phase 3 FUSION trial of ulefnersen, an investigational RNA-targeted medicine for FUS-ALS, a rare, often rapidly progressive genetic form of ALS. The study met its primary endpoint, showing a statistically significant improvement over placebo on a combined measure of function and survival. Secondary endpoints were also supportive, and the treatment was generally well tolerated. FUSION is the first placebo-controlled trial targeting the underlying genetic cause of FUS-ALS. Ulefnersen is still investigational and not yet approved. The companies plan to discuss the results with the FDA and other health authorities. Thank you to the participants, families, investigators, and advocates who made this possible. 💙 Learn more at otsuka.com/news #ALS #FUSALS #RareDisease #ClinicalResearch
Our 19th Annual Hope Walks for ALS Family Fun Day was amazing! Despite the cloudy skies, we loved spending time with our community and enjoying great food, raffle prizes, puppies, and more!
👟
Thank you so much to our Walk Chair, KC Lubinewski, and a
Our 19th Annual Hope Walks for ALS Family Fun Day was amazing! Despite the cloudy skies, we loved spending time with our community and enjoying great food, raffle prizes, puppies, and more! 👟 Thank you so much to our Walk Chair, KC Lubinewski, and all of our sponsors, friends, family, and volunteers that joined us to make the day so special. With your support, we exceeded our fundraising goal of $100,000! We are incredibly grateful for the generosity of our community. We couldn’t do the work we do without your help. ☀️ Thank you so much for helping us keep Hope on the Horizon!
The 19th Annual Hope Walks Family Fun Day is just around the corner! 
👟
Take a look back at last year's Walk Chair, Bob Spurrier, and swipe to meet the 2026 Walk Chair, Kathryn "KC" Lubinewski!
👟
There's still time to join and support a t
The 19th Annual Hope Walks Family Fun Day is just around the corner! 👟 Take a look back at last year's Walk Chair, Bob Spurrier, and swipe to meet the 2026 Walk Chair, Kathryn "KC" Lubinewski! 👟 There's still time to join and support a team! See link in bio or visit https://charity.pledgeit.org/ALSHopeWalk2026 to register or donate today!
Today is the last day to get a t-shirt for the 19th Annual Hope Walks for ALS! 
👟
To make sure you receive a t-shirt at check-in, register today at https://charity.pledgeit.org/ALSHopeWalk2026!
Today is the last day to get a t-shirt for the 19th Annual Hope Walks for ALS! 👟 To make sure you receive a t-shirt at check-in, register today at https://charity.pledgeit.org/ALSHopeWalk2026!
Volunteers are so important in helping us bring our events to life! 👟 To sign up to volunteer at the 19th Annual Hope Walks for ALS, visit the Hope Walks website at https://charity.pledgeit.org/ALSHopeWalk2026 or ALSHF.org/events today!
We’re officially one month away from the Walk and our T-Shirt is here! ✨Be sure to sign up by September 1st to get a free t-shirt when you check in! The 19th annual Hope Walks for ALS Family Fun Day is happening on September 20th at Temple Ambler Campus from 10AM to 12:30PM. We hope to see you there! See link in our bio or visit charity.pledgeit.org/alshopewalk2026 to sign up!
We are so exited to announce KC Lubniewski as this year’s walk chair! KC Lubniewski is blessed to be a wife and a mother of 2 young boys. She’s currently a professor at Monmouth University and actively engaged in ALS research and community outreach. Like so many others living with ALS, she’s learned how quickly life can change, but she’s also discovered the strength that comes from family, friends, and community support.  She’s participating in this ALS Walk to help raise awareness, support research, and stand with everyone affected by this disease. Every step taken and every conversation started helps bring us closer to better treatments, more understanding, and ultimately a cure. KC’s Courage Crew would love for you to join them to walk beside her and help shine a light on ALS! You can join the courage crew by visiting the Hope Walk website (linked in our bio) or visiting charity.pledgeit.org/ALSHopeWalk2026/teams/KCsCourageCrew #ALSHF #HopeWalks2026
The ALS Hope Foundation was humbled to be part of the annual “Quinn for the Win” Ice Bucket Challenge at Empire City Casino in Yonkers, NY, honoring the LEGACY of the OG, Pat Quinn, and everyone who has been impacted by ALS.

The IBC cont
The ALS Hope Foundation was humbled to be part of the annual “Quinn for the Win” Ice Bucket Challenge at Empire City Casino in Yonkers, NY, honoring the LEGACY of the OG, Pat Quinn, and everyone who has been impacted by ALS. The IBC continues to remind us what can happen when a community comes together. The incredible legacy created by Pat Quinn and Pete Frates continues on in special ways. It also reminds us that there is still work to do with collaboration, advocacy, and a shared commitment to find a solution or a cure. Thank you to Big Pat, the Quinn family, and Larry Kaplan for all your advocacy and awareness. We appreciate all that you do!
In April, Dr. Terry Heiman-Patterson and PAC member Dr. Stacy Lewin-Farber traveled to Capitol Hill to advocate for the passing of this bill. They advocated for improving access and quality of care for people living with ALS and advancing federal fun
In April, Dr. Terry Heiman-Patterson and PAC member Dr. Stacy Lewin-Farber traveled to Capitol Hill to advocate for the passing of this bill. They advocated for improving access and quality of care for people living with ALS and advancing federal funding for ALS research. The Senate’s passing of ACT for ALS Reauthorization is a major win for the ALS community. We are one step closer, but the battle is not yet won. After lawmakers return in September, legislation will be passed onto the President. We are pleased with the momentum being created, but ALS still demands urgency. Today has shown us that together, we can make a difference. #actforals #alsadvocacy #alscollaboration
Support the OB Army and ALS Research by joining Designer Bag Bingo! In addition to 10 designer bags, there will be several raffle baskets and a 50/50 raffle during the event! 

Designer Bag Bingo Details:
📅 Saturday, October 10, 2026
📍 Garrettford- Encouraging news for the FUS-ALS community. Otsuka and Ionis Pharmaceuticals have announced positive topline results from the Phase 3 FUSION trial of ulefnersen, an investigational RNA-targeted medicine for FUS-ALS, a rare, often rapidly progressive Our 19th Annual Hope Walks for ALS Family Fun Day was amazing! Despite the cloudy skies, we loved spending time with our community and enjoying great food, raffle prizes, puppies, and more!
👟
Thank you so much to our Walk Chair, KC Lubinewski, and a The 19th Annual Hope Walks Family Fun Day is just around the corner! 
👟
Take a look back at last year's Walk Chair, Bob Spurrier, and swipe to meet the 2026 Walk Chair, Kathryn "KC" Lubinewski!
👟
There's still time to join and support a t Today is the last day to get a t-shirt for the 19th Annual Hope Walks for ALS! 
👟
To make sure you receive a t-shirt at check-in, register today at https://charity.pledgeit.org/ALSHopeWalk2026!
Volunteers are so important in helping us bring our events to life! 
👟 
To sign up to volunteer at the 19th Annual Hope Walks for ALS, visit the Hope Walks website at https://charity.pledgeit.org/ALSHopeWalk2026 or ALSHF.org/events today!
We’re officially one month away from the Walk and our T-Shirt is here! 

✨Be sure to sign up by September 1st to get a free t-shirt when you check in! 

The 19th annual Hope Walks for ALS Family Fun Day is happening on September 20th at Temple
We are so exited to announce KC Lubniewski as this year’s walk chair!

KC Lubniewski is blessed to be a wife and a mother of 2 young boys. She’s currently a professor at Monmouth University and actively engaged in ALS research and communi
The ALS Hope Foundation was humbled to be part of the annual “Quinn for the Win” Ice Bucket Challenge at Empire City Casino in Yonkers, NY, honoring the LEGACY of the OG, Pat Quinn, and everyone who has been impacted by ALS.

The IBC cont In April, Dr. Terry Heiman-Patterson and PAC member Dr. Stacy Lewin-Farber traveled to Capitol Hill to advocate for the passing of this bill. They advocated for improving access and quality of care for people living with ALS and advancing federal fun

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