ALS Hope Foundation
  • What Is ALS?
  • About The Foundation Foundation Staff Programs and Activities Board of Directors Financial Information Funds
  • About The Center Of Hope Clinic Staff Assistive Technology Stories of Hope
  • Basic Lab Research Clinical Research Research Staff Clinical Trial and Research Resources FALS Research
  • Upcoming Events Become a Volunteer! Gala of Hope 2025
  • News Blog
  • Virtual Support Groups True North Men's Group PALS Resources Assistive Technology Home and Daily Living Guide Veterans ALS Action Committee End the Legacy Hope In Action
  • Donate
ALS Hope Foundation
  • What Is ALS?/
  • About ALS Hope /
    • About The Foundation
    • Foundation Staff
    • Programs and Activities
    • Board of Directors
    • Financial Information
    • Funds
  • ALS Center of Hope/
    • About The Center Of Hope
    • Clinic Staff
    • Assistive Technology
    • Stories of Hope
  • Research/
    • Basic Lab Research
    • Clinical Research
    • Research Staff
    • Clinical Trial and Research Resources
    • FALS Research
  • Events/
    • Upcoming Events
    • Become a Volunteer!
    • Gala of Hope 2025
  • News Blog/
  • Resources/
    • Virtual Support Groups
    • True North Men's Group
    • PALS Resources
    • Assistive Technology
    • Home and Daily Living Guide
    • Veterans ALS Action Committee
    • End the Legacy
    • Hope In Action
  • Donate/
ALS Hope Foundation

Hope Is On The Horizon

mnfiles

ALS Hope Foundation
  • What Is ALS?/
  • About ALS Hope /
    • About The Foundation
    • Foundation Staff
    • Programs and Activities
    • Board of Directors
    • Financial Information
    • Funds
  • ALS Center of Hope/
    • About The Center Of Hope
    • Clinic Staff
    • Assistive Technology
    • Stories of Hope
  • Research/
    • Basic Lab Research
    • Clinical Research
    • Research Staff
    • Clinical Trial and Research Resources
    • FALS Research
  • Events/
    • Upcoming Events
    • Become a Volunteer!
    • Gala of Hope 2025
  • News Blog/
  • Resources/
    • Virtual Support Groups
    • True North Men's Group
    • PALS Resources
    • Assistive Technology
    • Home and Daily Living Guide
    • Veterans ALS Action Committee
    • End the Legacy
    • Hope In Action
  • Donate/

Page 1

Season of Hope Page 2 left

Right Side

Inside Left

  • What Is ALS?/
  • About ALS Hope /
    • About The Foundation
    • Foundation Staff
    • Programs and Activities
    • Board of Directors
    • Financial Information
    • Funds
  • ALS Center of Hope/
    • About The Center Of Hope
    • Clinic Staff
    • Assistive Technology
    • Stories of Hope
  • Research/
    • Basic Lab Research
    • Clinical Research
    • Research Staff
    • Clinical Trial and Research Resources
    • FALS Research
  • Events/
    • Upcoming Events
    • Become a Volunteer!
    • Gala of Hope 2025
  • News Blog/
  • Resources/
    • Virtual Support Groups
    • True North Men's Group
    • PALS Resources
    • Assistive Technology
    • Home and Daily Living Guide
    • Veterans ALS Action Committee
    • End the Legacy
    • Hope In Action
  • Donate/

ALS Hope Foundation

The ALS Hope Foundation is committed to helping people with ALS today and dedicated to finding a cure for those of the future.

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Tickets are on sale now for the 8th Annual Gala of Hope! Join us for an evening filled with hope and community 💙✨ 

This year, we will have ALS Warrior, Justin Ramirez as our guest speaker and a special performance by Stephen Kellogg! Also be sure t
Tickets are on sale now for the 8th Annual Gala of Hope! Join us for an evening filled with hope and community 💙✨ This year, we will have ALS Warrior, Justin Ramirez as our guest speaker and a special performance by Stephen Kellogg! Also be sure to join our VIP hour exclusively for Patients and their Caregivers from 5-6PM! To learn more about the event and purchase tickets, please visit the link in our bio or visit charity.pledgeit.org/gala-of-hope If you have any questions, please reach out to marinne@alshopefoundation.org
We had some new visitors to the ALS Hope Office! Brian and Steve of Hahn Welding Supply Allentown stopped by to make a donation in honor of Brian’s beautiful mother. We are so lucky to have great community partners like Brian and Steve supporti
We had some new visitors to the ALS Hope Office! Brian and Steve of Hahn Welding Supply Allentown stopped by to make a donation in honor of Brian’s beautiful mother. We are so lucky to have great community partners like Brian and Steve supporting our mission! If you’d like to learn more about Haun Welding Supply Speciality Gases visit haunweldingsupply.com
The ALS Hope Foundation and Hope Loves Company are teaming up for a one of a kind event! 

The community gathering, lecture, and educational conversation will be hosted by Jodi O’Donnell Ames and Dr. Terry Heiman-Patterson. Together, they&rsquo
The ALS Hope Foundation and Hope Loves Company are teaming up for a one of a kind event! The community gathering, lecture, and educational conversation will be hosted by Jodi O’Donnell Ames and Dr. Terry Heiman-Patterson. Together, they’ll share insights from their 25 years working to fight ALS and discuss the book “Someone I Love Has ALS: A Caregiver’s Guide.” This free event is welcome to those living with ALS, their caregivers, families, as well as professionals and anyone seeking deeper understanding, shared learning, and connection. 📅 Saturday, March 21, 2026 ⏰ 4:00–6:00 PM EST 📍 Global Neurosciences Institute, Pennington, NJ 💻 Virtual attendance available (Zoom link shared after registration) 🎟 Free admission See the link in our bio to RSVP/Register or visit alshf.org/events
Our very own Dr. Terry Heiman-Patterson and Dr. Lyle Ostrow are teaming up with Dr. Richard Bedlack for a new monthly webinar series, Hope Untangled! 

Join the experts for a thoughtful discussion on how to differentiate fact vs speculation in ALS sc
Our very own Dr. Terry Heiman-Patterson and Dr. Lyle Ostrow are teaming up with Dr. Richard Bedlack for a new monthly webinar series, Hope Untangled! Join the experts for a thoughtful discussion on how to differentiate fact vs speculation in ALS science and treatment! ✍️ See the link in our bio to RSVP or visit alshf.org/events. The series will be presented by Everything ALS, ALSHF, and ALS Untangled and held on Feb. 18th, Mar. 18th, and May 13th at 4pm PT / 7pm ET
Huge shout-out to this absolute do-it-all personal assistant 🙌 

Do-It-All Donna stopped by our storage unit last week. They went above and beyond, helping one of our families safely move equipment out of their home and into our storage unit for don
Huge shout-out to this absolute do-it-all personal assistant 🙌 Do-It-All Donna stopped by our storage unit last week. They went above and beyond, helping one of our families safely move equipment out of their home and into our storage unit for donation. Donna says, “Helping families through moments like these is the reason I started this business.” Thank you, Donna! If you’re looking for someone in the Chester County area who can handle it all (and then some), this is your person! Contact Donna at: @doitalldonna14 doitalldonna14@gmail.com or visit doitalldonna.com for more information!
Our BCI was excited to host the Speech Language Pathology Team from Gwynedd Mercy University today to showcase our Brain Computer Interface technology. We exchanged knowledge about neuroscience research and augmentative and alternative communication
Our BCI was excited to host the Speech Language Pathology Team from Gwynedd Mercy University today to showcase our Brain Computer Interface technology. We exchanged knowledge about neuroscience research and augmentative and alternative communication tools. We look forward to collaborating more in the future. @gmercyuslp
What an unforgettable night! The first ever Play Like a Champion benefit concert for ALS proved what our community can do when we come together! Thanks to everyone who came out to support the cause and to honor someone like Scott Goldsberry, whose compassion and generosity knew no bounds. Thank you to the @asburyparkbrewery and to every band, volunteer, and supporter who came out last night! And a BIG thanks to Jake of @freethewitness for organizing this event and to all the families and those living with ALS who came out to support and raise awareness. 💙
The December 2025 Newsletter: Conference Edition is out! Read it on fb or our website.
The December 2025 Newsletter: Conference Edition is out! Read it on fb or our website.
Thank you to everyone who supported this year’s Season of Hope and to Nona’s Crew! Their story and family have served as an inspiration to us all 💙

❄️ If you haven’t donated yet there’s still time! Check out the link in our
Thank you to everyone who supported this year’s Season of Hope and to Nona’s Crew! Their story and family have served as an inspiration to us all 💙 ❄️ If you haven’t donated yet there’s still time! Check out the link in our bio or see the QR Code on this post.
Tickets are on sale now for the 8th Annual Gala of Hope! Join us for an evening filled with hope and community 💙✨ 

This year, we will have ALS Warrior, Justin Ramirez as our guest speaker and a special performance by Stephen Kellogg! Also be sure t We had some new visitors to the ALS Hope Office! Brian and Steve of Hahn Welding Supply Allentown stopped by to make a donation in honor of Brian’s beautiful mother. We are so lucky to have great community partners like Brian and Steve supporti The ALS Hope Foundation and Hope Loves Company are teaming up for a one of a kind event! 

The community gathering, lecture, and educational conversation will be hosted by Jodi O’Donnell Ames and Dr. Terry Heiman-Patterson. Together, they&rsquo Our very own Dr. Terry Heiman-Patterson and Dr. Lyle Ostrow are teaming up with Dr. Richard Bedlack for a new monthly webinar series, Hope Untangled! 

Join the experts for a thoughtful discussion on how to differentiate fact vs speculation in ALS sc Huge shout-out to this absolute do-it-all personal assistant 🙌 

Do-It-All Donna stopped by our storage unit last week. They went above and beyond, helping one of our families safely move equipment out of their home and into our storage unit for don Our BCI was excited to host the Speech Language Pathology Team from Gwynedd Mercy University today to showcase our Brain Computer Interface technology. We exchanged knowledge about neuroscience research and augmentative and alternative communication
What an unforgettable night! The first ever Play Like a Champion benefit concert for ALS proved what our community can do when we come together! Thanks to everyone who came out to support the cause and to honor someone like Scott Goldsberry, whose co
The December 2025 Newsletter: Conference Edition is out! Read it on fb or our website. Thank you to everyone who supported this year’s Season of Hope and to Nona’s Crew! Their story and family have served as an inspiration to us all 💙

❄️ If you haven’t donated yet there’s still time! Check out the link in our

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